That number is predicted to rise to an estimated 7.2 million in 2025 and is projected to reach 13.8 million in 2060, barring the development of any medical breakthroughs to prevent, slow or cure Alzheimer’s. My colleagues and I are presenting the methodology of our study in this paper so other researchers and developers will have access to the innovative methods framework we devised to produce technology meeting the needs of the intended end users – actual caregivers.”Īccording to the Alzheimer’s Association, an estimated 6.5 million Americans age 65 and older are living with Alzheimer’s dementia in 2022. population ages, the need for user-centered support for caregivers, like our Helping the Helpers app, becomes even more necessary. My mother and brother are the primary caregivers for my father, and I am a remote ‘tele-caregiver.’ We know that caregivers need support,” said Dr. ![]() “My family and I understand the daunting challenges of caring for someone with dementia. This can lead to significant caregiver burden, stress and potentially mistakes which might be life threatening to the individual with Alzheimer’s or related dementia. Caregivers, many of whom have other responsibilities inside or outside the home, are typically under-trained, under-resourced and under-supported in their role as medication manager. Managing the medications for individuals with dementia is often confusing, time consuming and difficult, especially if the cognitively impaired patient is resistant, belligerent or both. We analyze this input and it’s an important component of our participatory co-design with caregivers’ innovation.” It might be a video of a patient refusing to take medications. It might be a photo of the large number of medications that have to be managed. It can be a photo, a video, an audio file or a written memo. “So we ask participants to record what they are going through during the day related to medication management and send something to us twice a day. “We want to know what’s going on,” said study corresponding author Richard Holden, PhD, M.S., a human factors engineer, social cognitive psychologist and implementation scientist. Feasibility testing of the prototype app.Īmong other innovations, the researchers added a virtual component to contextual inquiry to learn what caregivers go through during the day as they tackle medication management.Co-design, including input from caregivers, of a prototype app to support caregiver-assisted medication. ![]()
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